Diary of a Spoonie | Balancing Work, Life & Chronic Illnesses


Danielle Levy, Spoonie blogger, fibromyalgia, nurse blogger, lifestyle blogger, Liverpool blogger, Wirral blogger,

It's been a little while since I wrote a Diary of a Spoonie post but I am back working full time, working out more consistently at the gym, being online via my blog and social media more consistently. Basically getting a bit more balance in my life so it's time to get back with an update of how I've been doing.

I swear at the moment my body is trying to play medical condition bingo cause I seem to just be getting new conditions left, right and centre. It genuinely took one of my colleagues asking how I cope with all my chronic illness and chronic pain whilst also trying to work full time and am still so upbeat for me to realise that since being diagnosed with multiple illnesses, as sad as it may sound I've learnt to just get on with it cause if I stopped and focused too much on how I now have several incurable conditions I'd end up falling into a black hole of depression and that's something I think I'd struggle to pull myself out of. Whereas if I push it somewhat to the back of my mind and think of it as just another thing to deal with during my day, it's a lot easier to manage.

Over the past couple of months and with the help of an amazing PT I've learnt and really focused on getting some balance in my life and that not everything has to be perfect. I've focused on the importance of self-care, knowing and respecting my limits, and setting certain boundaries for myself. During May, June and some of July I've really been focusing on consistent sleep times so yes that means I have a bedtime until my body naturally gets use to it and I get tired and ready for bed at a respectable time. I've really been focusing on getting to sleep around 10.30pm and getting up around 7.30am, I've played around with these times and found that if I try and get up any earlier on non-shift days then I really struggle with fatigue throughout the day and get a bad afternoon slump and if I go to bed any later then I really struggle because I naturally a more night owl type of person so if I stay up too late my body will naturally flip and it can be 1/2am before I can get to sleep and my heart rate seems to go all crazy so I really try and concentrate on sticking to my bedtimes. 

Practicing self-care, being strict with my bedtime routines and getting more movement into my day has really helped me to control some of my chronic illnesses and has definitely helped me keep my pain to a minimum and let me actually enjoy life instead of being tired and fatigued for most of the day. 

What's your favourite self-care activities?

Speak to you next time!
Danielle Levy, Wirral blogger, Liverpool blogger,
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Danielle Levy
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